Angela Kirkpatrick is concerned about what stopping the treatment will do to her symptoms.
Medical regulators approve a gene therapy that aims to cure sickle cell disease and beta thalassemia.
Only one in 20 public bodies pays what it really costs to employ care workers to deliver support at home.
A range of new services will be available without the need to go to a GP, from December, in England.
The NHS watchdog says the findings are the worst in England since focused inspections began in 2018.
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